We are skilled in the development of information resources, such as films to assist patients' and the general public's awareness and understanding about cancer and its treatment, including clinical trials. We also contribute to information leaflets in collaboration with other charities such as Macmillan, Breast Cancer Care, Leukaemia Care, Independent Cancer Patients' Voices. See bleow for some examples of materials we have produced in the past.
Developed with the help of members of the Brighton Breast Cancer Support Group, a yoga film specifically aimed at women with breast cancer. It comprises 2 parts:
Part 1 has an introduction from Professor Dame Lesley Fallowfield, a specialist in quality of life in breast cancer patients. She explains why women with breast cancer often have surgery to the armpit as well as the breast. There is also a short introduction to yoga from Mokshini, the yoga teacher, plus a section with her demonstrating each pose in a graduated way from basic to advanced level practice (levels 1-3).
Part 2 is an hour-long class of yoga with women from the Brighton Breast Cancer Support Group who are of different ages and abilities.
Michele Angelo Petrone was a talented young artist whose career took a dramatic change in direction when he developed Hodgkin Disease when only 30 years old.
Whilst isolated for weeks in hospital receiving high dose chemotherapy, he decorated his room with paintings depicting the complex emotions that were engulfing him. Some of these paintings formed the basis for exhibitions and later Michele wrote prose to accompany his work which he performed in many places throughout the world and published in a book entitled 'The Emotional Cancer Journey'.
Sadly Michele's own journey ended with his death in 2007 but prior to that he set up the MAP Foundation to ensure that the workshops would continue well beyond his lifetime. This film is a tribute to Michele and hopefully captures the essence of one amazing individual's Emotional Cancer Journey.
Watch the film here
This film helped potential participants to decide whether they wanted to join the CompLEEment-1 Study. The purpose of this study was to further learn about the safety and efficacy of ribociclib when added with standard treatment (letrozole) in HR+ HER2-negative advanced breast cancer patients who have had no prior hormonal treatment for advanced disease. The film was given to patients by their oncologists or healthcare professional along with other trial information to help inform their decision.
This randomised clinical trial examined planned treatment breaks in locally advanced/metastatic renal cancer. We produced a patient information film, that described the trial in different sections, with graphics and comments from doctors, and nurses. There is also a section where the Clinical Investigator for the study responds to questions on the trial from members of the public.
This randomised clinical trial, Pulmonary Metastasectomy in Colorectal Cancer (PuLMiCC), investigated the management of patients with advanced colorectal cancer.
We developed two films for this clinical trial.
One was a training film to help those describing the trial to potential patients. The other film was to supplement the patient's written information sheet. It had clear graphics and sections on explaining randomisation, the treatments and tests involved over the trial period. There were also clips with doctors explaining the surgical and clinical aspects of the trial.
This study compares the insertions of palliative tunnelled long-term abdominal drains to standard of care large volume paracentesis in the management of refactory ascites.
We produced a pair of films showing two doctors introducing and explaining the trial to two fictional patients with advanced liver disease, to aid in the training of healtcare professional recruiting patients to the trial.
This set of educational materials illustrates different Metastatic Bone Disease (MBD) consultations with breast and prostate cancer patients. The 5 films depict scenarios showing various ways a healthcare professional may discuss MBD with patients. The materials were used in a set of workshops with small groups of healthcare professionals as triggers to engage participants in discussion.